If this is your first visit to my blog, you might want to start with my first entry, "How I got here - the short version".

Saturday, July 20, 2019

A welcome respite

Well, my new normal seems to be waking up about 4:00 a.m., as I did this morning.  I don’t mind, anymore, because I went to bed at 10:00 last night and had a long three-hour nap yesterday afternoon.  The house is very quiet, and I’ve come to like this contemplative time to myself.

I got my Day 10 blood work results yesterday, and they’re great!  My neutrophils are hanging in there at 2300, a little below what’s normal for the average person but well above what’s considered acceptable to continue treatment without any bone marrow support.  Additionally, the cancer marker, CA-125, continues to drop, indicating my cancer is receding.  I’ve got four chemotherapy treatments under my belt with two more to go.  I really couldn’t ask for better.

My energy levels are okay, probably great for this stage in the chemo game, but I certainly look forward to the day that I feel fully myself again.  I did have a little scare about a week ago when my temperature spiked up to 101.6, but it resolved within six hours with some ibuprofen and Tylenol, and no other symptoms.  My oncologist wasn’t too concerned, and with the positive Day 10 blood work, we consider it of no consequence.

Paul, the boys, and I leave for Hilton Head Island today for a week long family vacation, perhaps our last together for a while with the boys starting college in a few short weeks.  I want to cherish this time we’ll have together, and I look forward to many hours reading my book in a comfy chair under the beach tent.  Since the boys had solo experiences with no parents down at Hilton Head earlier this summer, I hope Paul and I don’t cramp their style too much.  I have to keep reminding myself that they’re young men now with their own agendas.

I’m lucky that this trip I planned back in February before I knew of my cancer recurrence so nicely fits into my chemo schedule.  It’s during the third week of the cycle, just before my next treatment on the 30th, and typically the week when I’m feeling at my best.  I don’t know that I’ll feel up to climbing the Sea Pines Lighthouse, but we do plan on going on an evening nature-guided kayak tour in the interior marshes of the island, near dolphin feeding grounds.  We’re all hopeful to kayak alongside the dolphins.  I’ve done this once before, and it was magical.  The touring company has named several of the dolphins, so I think this is a good indicator that they often appear.

However, I have to admit that the chemo regimen is getting old about now.  I’m tired of feeling tired, and I’m tired of parsing out my days based on someone else’s agenda.  I’m ready to plan my life at my own whim, but I remind myself that I’ve only got about another month to go before I’ve got all six treatments under my belt.  And then, hopefully, another long remission when I’m the captain of my own ship, heading to whatever new lands that ship takes me.  I’ve already got tentative plans of some travels I hope to undertake when I’m done.  It’s nice to have those goals and be an armchair travel agent, taking myself to both familiar and unfamiliar places.

But, then there’s my new life of an empty nester coming up and all the uncertainties that brings.  I know I’ve got to find something meaningful to occupy my time, and I enjoy finding myself sifting through the possibilities.  Cancer has a way of changing your perspective of what’s important, and though I only have inklings of where I’ll end up, I know I want to participate in something that matters, to give back to the universe some of the positive energy it has given me to get through this journey.

However, right now, I just need to focus on packing my suitcase and hitting the road to the coast, a welcome respite with my own agenda at the top of the list.  I think I’ve earned this one.


2 comments:

  1. Have a lovely holiday ... get some rest, some adrenaline and get lots of love from your menfolk!

    Big hugs!

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